Jeff was discharged today, and we're home for the weekend. More fun in Hershey to come on Monday. Jeff is feeling okay, but is still on some IV antibiotics that we have to administer through his central line for a couple more weeks.
To add insult to injury, Jeff's insurance company has announced that they aren't going to pay for his transplant. This news came the day after we found out that Dr. Claxton had chosen a donor. Really, this makes no sense. They allowed the hospital to go through the steps of searching for a suitable donor, and only then denied the treatment. I'm not really sure where that leaves us, but I do know that no less than three people, including Dr. Claxton, spent all day on the phone trying to sort this mess out. It's no wonder that health care in this country is so ridiculously expensive. Insurance companies get to dictate who gets what, and doctors spend half their time fighting with them about it.
In the mean time, the final medical evaluations of the donor get postponed until the finances can be worked out, which results in everything getting pushed backed and decreases Jeff's overall chances of surviving this blasted mess.
I might have more to say about this later, but right now I'm exhausted and I'm going to bed.
12 comments:
I don't even know what to say... That just doesn't seem right! It makes me so mad that they have the ability to denies someone treatment that could save their life. Stay positive... we will all pull together and raise the money if we have to.
You WILL have the money to get your husband through this. You have so many friends who care about your family. Trust us on this, Jamie!!
Yay!
Your family is home!
Be present to the moment.
FYI; Word will get around
and this insult to injury will
be solved.
Jeff & Jamie
Enjoy your sweet son...
he's one in a million.
Yay!
Your family is home!
Be present to the moment.
FYI: Word will get around
and this insult to injury will
be solved.
Jeff & Jamie
Enjoy your sweet son...
he's one in a million.
Whoops!
Wanted to correct my grammar errors
and ended up posting twice...
You'll have to take these comments
as impulsively as they are given..
spelling, punctuattion, and general
confusion.
Jamie - This is absurd! I work in the healthcare field and ins companies are getting absolutely ridiculous. Even in PT they continue to extend the people that dont need it and new strokes who really need therapy they cut in a less than 4 weeks.
I would ask if you havent already if this is common for them to do at the last minute, ask the doctor, ask insurance and attempt to file an appeal. A social worker should also be able to help you out with an appeal to harrisburg at least thats how it works in my setting.
If i can help in any way please email me rewheelerburns@yahoo.com. I will try to get you any information or if you want all of us to contact local congressmen etc i am sure we will all do that. That's why they are there. This is the last stress the 2 of you need.
Please email or have Nicky call if you need anything.
This is why we need healthcare reform NOW! With all the medical bankruptcies in this country I don't know how the health insurance companies sleep at night. It is tragic that insurance companies can do this to people.
Just know that all your friends and family will help anyway possiable just let us know and we will be there and are there for you and your family.
Hi Jeff and Jamie, Just wanted to let you know Denny and I are praying for u and thinking of u all the time.If we can do anything let use know.
love ya,
Denny and Mary Lou
Hi Jeff and Jamie! Insurance companies suck! That's all one can really say about that. Just enjoy your time at home as a family and I'm sure this problem will work itself out..as the others have said Friends and family will pull together when needed..you do live in an awesome community and we all work together! Best wishes and enjoy your time together!
Jen and Glenn Spong
That just sucks!!!! Who is the insurance company? Maybe if we all call, text or email them, it would help???? What do you think?
In the meantime, please know that you are in our hearts and minds.
I work with insurance companies all the time. As sad as it is to say the only way to really get things moving is to threaten with a lawyer. That will usually get there attention to listen to you.
Good luck and you do live in an awesome community that will rally for you.
Love Yvonne
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